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health, Lifestyle

Way’s of coping with a chronic illness

Way's of coping with a chronic illness

Way’s of coping with a chronic illness

Living with a chronic illness can make life very difficult indeed, as those living with one will understand. Yes I have a chronic illness but I am also a mum and wife still wishing to live my life and not let my health get the better of me.

I suffer with Endometriosis and have been living with the condition now for 16 years, resulting in surgeries. I also suffer with Fibromyalgia and depression – both of which recently diagnosed. A cocktail of medication is taken daily for various of reasons. I don’t like taking them but know they are for my own good.

Due to my health deteriorating I am having to sadly reduce my working hours and step down in my position at work. This is reluctantly being done as I love my job and I wish to continue working for as long as I can. I work as a support worker out in the community – currently on light duties and only working three day’s a week.

Daily chores are apart of everyday life and if not managed they soon begin to pile up…..If only the cleaning fairy was real.

The chronic pain really does make my life difficult, but things are still needing to be done at some point. At the moment I am currently under the care of consultants and attending pain management in London. I am trying to live life as comfortable and to the full the best I can, following specialist advice.

Hopefully soon I am due to start a specialist treatment plan but this sadly doesn’t start until October as these plans only run a few times a year and I have been booked on the next plan. In the meantime I am going to do all I can to manage my chronic pain better and make life easier for myself and my family.

Way's of coping with a chronic illness

Below is a list of my way’s of coping to still feel like a mum and wife whilst suffering a chronic condition. I may suffer a chronic condition but I am still a mum and wife with bills to pay and a house that needs cleaning.

Here are a few of my self-help tips

  • Make a list of jobs – Making a list of jobs that I know I can do and making up a weekly jobs planner to help me keep on top of things so they don’t pile up.
  • Post-it-notes – It is probably medication related (well I hope it is) but my memory is awful at the moment and I am easily forgetting things. Leaving myself little notes/reminders are currently helping massively.
  • A little bit each day – I have made a point to try and do a small amount each day. Long gone are the days of rushing around and trying to blitz the house in a day or two. I now have to go day-by-day doing what I can depending on how I am feeling.
  • Make chores more manageable – By using light-weight cleaning tools/aids it helps a great deal. No more big heavy hoovers, mops and buckets. My stomach muscles are not what they used to be due to my Endometriosis and surgeries.
  • Medication reminders – I am always asking myself “have I had my medication” – I purchased a dosset box. This gets filled up on a weekly basis and all I have to do is check the box. If my medication is still there for that day and times of day then it helps to remind myself.
  • Online shop – Online shopping is a godsend. No more having to struggle with heavy bags/trolleys. Ordering online makes my life so much more easier. I order our weekly shop online and pretty much everything else needed to be honest. I am even going to try online healthcare at some point.
  • Ask for help – I have always been a very independent person and to be honest asking for help is something I struggle with and absolutely HATE doing – but is something I have to start learning to now do. Ian is always telling me off where I overdo things and end up in pain.

Working from home will make life so much easier for me

Way's of coping with a chronic illness

  • Work from home – It goes without saying, reducing my working hours with my employer is having a knock-on-effect with our monthly income. I am currently trying to work more from home so I can be resting but also be working and helping pay the bills.
  • Plan ahead – On what I call “a good day” I like to plan ahead, by organising myself more. This can be anything from preparing for any upcoming family events, paying bills, meal prep/batch cook and reply to missed emails from a “bad day” as when I am in pain I tend to let things slip. Things are then easily missed or forgotten so I try my best to catch up with things and try and plan ahead the best I can.
  • Talk – I can sit and talk for hours about a load of gibberish but I must also learn to talk about my feelings more. Recently at one of my hospital appointments I was asked “how I was feeling” – this was done over a few questions in different ways. I ended up breaking down because to be honest I just feel useless now. A few years back I used to be able to do so much, be so organised and I look at myself now and how little I manage to do, I just feel like a complete failure. I have recently joined support groups to try and help me open up about how I am feeling and not hold it all in.
  • Rest/relaxation – Learn to rest would be a huge help to myself. I am always looking round and seeing things that are needing to be done, I just need to learn that it will still be there later/tomorrow and not everything can be done in a day. Or learn to ask for help and see if someone wouldn’t mind helping me. We are currently trying to form a family daily cleaning jobs list. If it works the way we hope then we will all have 1-2 jobs a day each and things shouldn’t get that bad.

Way's of coping with a chronic illness

  • Not stay indoors – Getting out for some fresh air is important. Staying shut away indoors isn’t good and it is good to get out even if just for a little while. I do enjoy walks with Coco, someone always comes with me just in case It gets a bit much. I do have to rest along the way but I do enjoy the fresh air and the walk. It helps to clear my head.
  • Weight loss – Trying to shift some weight is something I would love to do. I managed 3 stone loss a few years back and I would love to do it again plus more. Weight loss will also help my health. I am currently trying to do light exercise at home alongside trying to eat more healthy.
  • Sleep – I seem to have forgotten what sleep is lately. It has been ages since I have had a good full nights sleep. Some day’s I wake feeling more tired than when I had gotten into bed. I am constantly exhausted from the pain but just can’t sleep. I must look into way’s of helping to get a good nights sleep. A good nights sleep makes a huge difference when suffering chronic pain.

Do you suffer with a horrid chronic condition?

***Collaborative post***
Planning

Our Bucket List for 2016

our bucket list 2016

Our Bucket List For 2016

As we have now waved goodbye to 2015 and have already welcomed 2016, our plans for 2016 have already started to be made. We have some exciting times ahead and thought we’d make a bucket list and see how we do. Here is our bucket list for 2016.

Fingers crossed we manage to complete it.

  • Bedroom makeovers are desperately needed.
  • Plan lots of fun camping trips in the UK.
  • Hopefully buy our house…..fingers crossed, exciting times.
  • Start my Massage training now I finally have the all clear from my shoulder damage caused by my car accident. I hope to start my mobile  massage business asap now I’ve been given the all clear…..eeek exciting!
  • Grow our social media.
  • Attend blog conferences and meet other bloggers.
  • Enjoy a nice spa day and just relax for a day….bliss!
  • Celebrate Lee’s 16th birthday in Lee style.
  • Visit Barcelona football stadium. This is a wish Lee has had for a while now and we hope to make it happen this year for him.
  • Save really hard for a more relaxed Christmas. We will be making Christmas easier by following our money-saving plan the best we can.
  • To hit London on a massive shopping spree would be awesome.
  • To visit the beautiful Cornwall countryside.
  • Have lots of family fun day trips.
  • To have more family time together.
  • Learn how to relax more is a must this year.
  • Be more organised is something that must be put to the top of our list this year.
  • Reach our target at Slimming World would just be fantastic, our weight loss is currently at a standstill at the moment. We need a kick up the bottom I think.
  • Do a fun charity run is something we have wanted to do for a while now.
  • Have a friends only weekend away.
  • Have an up-to-date family photo shoot. It would be brilliant to update our family photo.
  • Stay positive – Endometriosis keeps knocking me down but I will not let it win!
  • Be prepared to help Lee through the transition stage of starting college.
  • Be more organised in the kitchen and meal plan better.
  • Watch Bradley perform on stage in the West End London.

our bucket list for 2016

 

We are rather keen to see how many of these we can complete this year. The challenge is now on!

Here’s to a new year.

New challenges.

New dreams.

New adventures.

&

A new journey.

Do you make a bucket list?